Advocating for Federal Lyme and Tick-Borne Disease Funding

Yesterday, I had the opportunity to participate in the Center for Lyme Action Virtual Fly-In. Every year at the beginning of the appropriations process, this nonprofit organizes a day of meetings with congressional representatives from all 50 states. As an advocate, I got to sit in meetings with New York’s senators and congressmen and women.Continue reading “Advocating for Federal Lyme and Tick-Borne Disease Funding”

Living With Brokenness

What does it mean to be broken? Personally, it’s not that I lack a piece of who I used to be, but rather I am no longer who I could’ve become. That journey was severed with disease, trauma, and grief. My body and mind have taken a hit and they can no longer continue alongContinue reading “Living With Brokenness”

Why is Lyme Disease So Challenging?

Lyme is incredibly challenging to diagnose, leaving patients without care for long periods of time. The test is about 50% accurate, so even if a doctor suspects Lyme, they have a 50/50 chance of giving a proper diagnosis. However, even if you get a positive result, you have now been diagnosed with a disease soContinue reading “Why is Lyme Disease So Challenging?”

Will It Get Better? Nighttime Panic

Whether you are staring at the ceiling or watching the fan spin, the time between getting in bed and actual sleep can be dangerous. For many of us with chronic illness, insomnia is a constant battle. Many diseases create this symptom, and it can be endlessly frustrating, especially when another symptom is extreme fatigue. TheContinue reading “Will It Get Better? Nighttime Panic”

Lyme Disease and Mental Health

The Central New York Lyme and Tick-Borne Disease Alliance was nice enough to do an interview with me about the intersection of Lyme Disease and mental health. The Alliance asked me because many of my most serious Lyme Disease symptoms have been related to mental health, and it took a long time for doctors andContinue reading “Lyme Disease and Mental Health”

Healing is Not Linear

One of the hardest parts of chronic illness is that you would never know it by looking at someone. This picture was taken at the sickest time of my life. In 2017, I arrived at back at WashU for my sophomore year fresh off of a tonsillectomy. I, of course, had complications from the surgery,Continue reading “Healing is Not Linear”