Yesterday, I had the opportunity to participate in the Center for Lyme Action Virtual Fly-In. Every year at the beginning of the appropriations process, this nonprofit organizes a day of meetings with congressional representatives from all 50 states. As an advocate, I got to sit in meetings with New York’s senators and congressmen and women.Continue reading “Advocating for Federal Lyme and Tick-Borne Disease Funding”
Tag Archives: Invisible Illness
Why is Lyme Disease So Challenging?
Lyme is incredibly challenging to diagnose, leaving patients without care for long periods of time. The test is about 50% accurate, so even if a doctor suspects Lyme, they have a 50/50 chance of giving a proper diagnosis. However, even if you get a positive result, you have now been diagnosed with a disease soContinue reading “Why is Lyme Disease So Challenging?”
Maddy Meets Lyme 